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PA Bulletin, Doc. No. 18-1800



Newborn Screening and Follow-Up Technical Advisory Board Meeting

[48 Pa.B. 7266]
[Saturday, November 17, 2018]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Tuesday, December 4, 2018, from 10 a.m. to 3 p.m. The meeting will be held at the Department of Transportation, Materials and Testing Laboratory, DGS Annex Complex, 81 Lab Lane, Harrisburg, PA 17110-2543.

 The agenda will include updates from the Bureau of Family Health (Bureau) on the Natus Phase 3 Implementation, the NewSTEPs 360 Improving Timeliness in Newborn Screening Grant, the NewSTEPs Site Visit Report and the Vital Records Match. The Lysosomal Storage Disorders/X-ALD, Cystic Fibrosis, Critical Congenital Heart Defects and Spinal Muscular Atrophy subcommittees will provide updates and the Bureau will provide data related to these disorders.

 For additional information or for persons with a disability who wish to attend the meeting and require auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Public Health Program Manager, Division of Newborn Screening and Genetics, (717) 783-8143 or for speech and/or hearing impaired persons, call V/TT (717) 783-6514 or the Pennsylvania AT&T Relay Service at (800) 654-5984 (TT).

 The Department reserves the right to cancel this meeting without prior notice.


[Pa.B. Doc. No. 18-1800. Filed for public inspection November 16, 2018, 9:00 a.m.]

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