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PA Bulletin, Doc. No. 19-1028



Newborn Screening and Follow-Up Technical Advisory Board Meeting

[49 Pa.B. 3541]
[Saturday, July 6, 2019]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Thursday, July 11, 2019, from 10 a.m. to 3 p.m. The meeting will be held at the Department of Transportation, Materials and Testing Laboratory, DGS Annex Complex, 81 Lab Lane, Harrisburg, PA 17110-2543.

 The agenda will include a presentation on ethical challenges related to newborn screening by Dr. Aaron Goldenberg, Director of Research, Case Western Reserve University School of Medicine, Cleveland, OH. In addition, the agenda will include updates from the Bureau of Family Health (Bureau) and the Lysosomal Storage Disorders/X-ALD, Cystic Fibrosis, Ethics and Critical Congenital Heart Defects subcommittees. The Bureau will provide data for each subcommittee update and for severe combined immunodeficiency disorder.

 For additional information or for persons with a disability who wish to attend the meeting and require auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Public Health Program Manager, Division of Newborn Screening and Genetics, (717) 783-8143. Speech and/or hearing impaired persons use V/TT (717) 783-6514 or the Pennsylvania AT&T Relay Service at (800) 654-5984 (TT).

 This meeting is subject to cancellation without notice.


[Pa.B. Doc. No. 19-1028. Filed for public inspection July 5, 2019, 9:00 a.m.]

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