Pennsylvania Code & Bulletin

• No statutes or acts will be found at this website.

The Pennsylvania Bulletin website includes the following: Rulemakings by State agencies; Proposed Rulemakings by State agencies; State agency notices; the Governor’s Proclamations and Executive Orders; Actions by the General Assembly; and Statewide and local court rules.

PA Bulletin, Doc. No. 18-1329



Newborn Screening and Follow-Up Technical Advisory Board Meeting

[48 Pa.B. 5424]
[Saturday, August 25, 2018]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Thursday, September 20, 2018, from 10 a.m. to 3 p.m. The meeting will be held at the Department of Transportation, Materials and Testing Laboratory, DGS Annex Complex, 81 Lab Lane, Harrisburg, PA 17110-2543.

 The agenda will include updates from the Bureau of Family Health (Bureau) on the Natus Phase 3 Implementation, the NewSTEPs 360 Improving Timeliness in Newborn Screening Grant, the Nursing Services Consultant-Quality Assurance vacancy and the improvement in the number of hospitals screening for Severe Combined Immunodeficiency. The Lysosomal Storage Disorders/X-ALD, Cystic Fibrosis, Critical Congenital Heart Defects and Spinal Muscular Atrophy subcommittees will provide updates and the Bureau will provide data related to these disorders. The agenda also includes updates related to newborn screening legislation and Community Systems Development and Outreach metabolic treatment center grants.

 For additional information or for persons with a disability who wish to attend the meeting and require auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Public Health Program Manager, Division of Newborn Screening and Genetics, (717) 783-8143 or for speech and/or hearing impaired persons, call V/TT (717) 783-6514 or the Pennsylvania AT&T Relay Service at (800) 654-5984 (TT).


[Pa.B. Doc. No. 18-1329. Filed for public inspection August 24, 2018, 9:00 a.m.]

No part of the information on this site may be reproduced for profit or sold for profit.

This material has been drawn directly from the official Pennsylvania Bulletin full text database. Due to the limitations of HTML or differences in display capabilities of different browsers, this version may differ slightly from the official printed version.