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PA Bulletin, Doc. No. 20-465



Newborn Screening and Follow-Up Technical Advisory Board Meeting

[50 Pa.B. 1910]
[Saturday, March 28, 2020]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Thursday, April 16, 2020, from 10 a.m. until 1 p.m. The meeting will be held as a teleconference Skype meeting. The dial-in number is (267) 332-8737 and the conference access ID is 742105838#.

 The agenda will include discussions about the Newborn Screening Senate Bill 983/House Bill 730; updates from the Bureau of Family Health (Bureau); and updates from the Hemoglobinopathy, Lysosomal Storage Disorders/ X-ALD, Cystic Fibrosis, Ethics and Critical Congenital Heart Defects subcommittees. The Bureau will present data for each subcommittee update and for severe combined immunodeficiency disorder.

 For additional information or for persons with a disability who wish to attend the meeting and require an auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Director, Division of Newborn Screening and Genetics, (717) 783-8143. Speech and/or hearing-impaired persons should use V/TT (717) 783-6514 or the Pennsylvania AT&T Relay Service at (800) 654-5984 (TT).


[Pa.B. Doc. No. 20-465. Filed for public inspection March 27, 2020, 9:00 a.m.]

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